Denne hjemmeside bruger cookies, så vi kan give dig den bedst mulige brugeroplevelse. Cookieoplysninger gemmes i din browser og udfører funktioner som at genkende dig, når du vender tilbage til vores hjemmeside og hjælper vores team til at forstå, hvilke dele af hjemmesiden du finder mest interessante og nyttige.
Bliv DEBRA-medlem
We are the patient support organisation for people living with any form of inherited or acquired EB in the UK.
We are committed to supporting people living with or directly affected by EB and offer a range of services and EB community support to enhance quality of life, whether you are a DEBRA member or not.
However, by joining us as a member you will have access to an EB support network where you get information and support over the phone, virtually, and in-person, and access other great benefits including bespoke DEBRA UK events, where you can connect with other members of the EB community, discounted holiday breaks, advocacy, and expert financial information, support, and grants.
Bliv DEBRA-medlem
“DEBRA betyder meget for os. De har hjulpet os på så mange måder. Hver gang jeg har et problem, giver vores Community Support Manager ekspertrådgivning, følelsesmæssig støtte og nyttige praktiske og økonomiske oplysninger, som vi ellers ikke ville have adgang til."
DEBRA medlem
Membership also gives you a voice and the opportunity to shape what the charity does; the research projects we invest in, and the services we offer for the whole EB community.
As well as being there for you, we need your support. By becoming a member you will be making a difference because the more members we have, the more data we have, which is crucial to support our EB research programme, and with more members we have a louder collective voice to help lobby the government, the NHS, and other organisations for the support we need to improve services for the benefit of the entire EB community.
So there really er ikke any reason not to become a member. It ikke cost you anything and you can apply to join in minutes.
You may never need us, but we are here for you when you do, and by becoming a member you can help ensure that other people living with, or directly affected by enhver form for EB, get the support they need.